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UOAA Social Blog

UOAA Social Blog

UOAA exists for the sole purpose of helping YOU or someone you love return to a normal, healthy, active and productive life with an ostomy or continent diversion. We welcome you to our community and invite you to feel at home here.

Welcome to our Acting Secretary

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The UOAA is proud to announce the appointment of Esten Gose as the Acting Secretary.  Esten will serve a term of one year as the Secretary of the UOAA.   Esten lives in Northern Seattle.  Esten serves as the YODAA Chair, Social Media Chair and is anxious to work with the organization to fulfill its mission.  

 

Welcome to the team, Esten!

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The Phoenix magazine provides solutions to the many challenges of living with a colostomy, ileostomy, urostomy or continent diversion (j-pouch, kock pouch, etc.). From skin care to nutrition to intimacy, in-depth articles written by medical professionals, authors and ostomates show readers how to return to a full and rewarding life with an ostomy.Read More

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Youth Rally, Inc launches official Facebook page

Youth Rally, Inc has launched their official Facebook page at: http//www.facebook.com/YouthRallyInc. The facebook page has been created to tell the world about Rally and find lots more teens to come to Rally.

The Youth Rally is a camp that provides a non-threatening environment for kids between the ages of 11 and 17 with any sort of bowel or bladder dysfunction. The Youth Rally is designed to help the kids understand that they are not alone and that everyone has the same opportunities to achieve their goals, regardless of any medical or physical differences. The kids benefit from educational programs, peer support, motivational speakers, friendship, and activities – fashion show, rap sessions, shopping, a trip to an amusement park and a gala dance and graduation celebration on the last night.

Operated by the Youth Rally Committee (YRC) strives to provide a positive support network that highlights independence and individuality as tools youths can use to regain confidence and a sense of belonging. The YRC is devoted to providing a positive atmosphere of support, learning, and personal growth for youths with bowel and/or bladder dysfunction. Every year the Youth Rally teaches campers that everybody, regardless of any medical or physical differences, matters as a person and has the ability to achieve their goals.

Help Spread the Word about Feeding Tube Awareness Week, February 5–11

The goal of Feeding Tube Awareness Week is to raise awareness of enteral/tube feeding as a positive and often life-saving medical intervention for those who are unable to eat and drink enough to sustain life and thrive. It is a time for HEN consumers to step forward (as much as you are able and comfortable doing) and tell people how tube feeding has helped you. 

Last year some people reached out to their local media (newspapers, TV, radio stations) to share their stories, while others shared stories through social media outlets such as Facebook or Twitter. People posted videos about tube feeding on You Tube; parents shared their children's stories in school; and some maybe just spoke a little more openly with friends and family about what it means to them to have a feeding tube and/or why they need a feeding tube.

Consider what you can do to help spread the word. Below you'll find several links.

  • The flyer alone (1 page) just announces the event and dates, and gives Web sites for more information. 
     
  • The flyer for consumers (2 pages) has the dates and Web site information, along with suggestions for how consumers can help spread the word.
     
  • The media sheet contains information you can share--about tube feeding and Feeding Tube Awareness Week--as well as tips on how to get the local media interested in your story. 
     
  • The press release template can be adapted to reflect your experiences and your story. Personalize the press release, and get it out to your local media. Thanks to Shawna Forrester Smith for providing the template. 
     
  • The flyer for clinicians/professionals (2 pages) also has the dates and Web site information, along with suggestions for how clinicians and professionals involved with home enteral nutrition (tube feeding) can participate in the Awareness Week.

Share your stories! Send your videos and they will post them on their YouTube page; send them links to any media coverage, and they will post them on their Web site. Watch the Oley Foundation and Feeding Tube Awareness Facebook pages for tube feeding topics, and join the discussions!

Please contact Lisa Metzger in the Oley office if you have questions or suggestions to share (800-776-6539 or metzgel@mail.amc.edu).

The Oley Foundation and Feeding Tube Awareness Foundation are partnering to raise awareness of tube feeding through Feeding Tube Awareness Week.  

 

Do you have Short Bowel or Know Someone Who Does?

There is help out there and the UOAA has worked with a group that has provided a great deal of information to those who suffer from Short Bowel Syndrome.  They have been working with a great Nutritionist who has produced a guide for those with SBS to help manage day to day living.  Please feel free to take a look a the site and request a copy of the new book if you or someone you know may be in need of this useful information.  http://shortbowelsupport.com/register.htm

 

** The UOAA shows no bias to any company , but always promotes passing on information and educating all to the best of its ability.***

Please welcome our new Board Members

UOAA would like to welcome the following people to their current positions on the Management Board of Directors. As of January 1st, 2012, your new officers are:

 

 

President Elect: LeeAnn Barcus
Vice President: Susan Burns
Director: Diane Miterko
Director: Lynne Kramer
Director: Bob Baker (took office in October)
Treasurer: Renee Rodak (Took office in October)

 

The UOAA looks forward to a productive year of supporting the Affiliated Support Groups and Ostomates Nationwide, continually striving to inform the public, health care providers and fellow ostomates through awareness, education materials, The Phoenix magazine and outreach.